CTF NF Conference

The NF Conference is recognized as the premier annual scholarly gathering of over 400 international neurofibromatosis (NF) researchers and clinicians. NF type 1, NF type 2 and Schwannomatosis SWN are rare neurogenetic syndromes that result in significant morbidity and mortality, for which there are no proven therapies and that are caused by genetic mutations implicated in many common diseases. Recent discoveries have shown that many malignant cancers such as breast, brain and lung cancers show hot spot mutations in the NF genes, which has significantly increased the larger cancer community’s appetite in understanding neurofibromatosis.
The 3-1/2 day event is sponsored by the Children’s Tumor Foundation and organized along with thought leaders in the fields of neurofibromatosis. The agenda of the conference is designed to provide education about best clinical practices for these rare genetic tumor syndromes, opportunities to share major advances in research and sessions that support the development of new collaborations and the growth of new investigators. This conference is a critical venue for the presentation and integration of basic science discovery, translational data and outcomes from clinical trials in a meaningful way to both enhance the quality of ongoing research and improve current clinical care.

The annual NF Conference is hosted and sponsored by the Children’s Tumor Foundation, a non-profit 501( c) (3) medical foundation dedicated to improving the health and well-being of individuals and families affected by the neurofibromatosis (NF). The mission of the Children’s Tumor Foundation is to: Drive research, expand knowledge, and advance care for the NF community.

Our Vision: End NF