HU-Toolbox

HU-Toolbox

A Mobile application developed in collaboration with the Sickle Cell Disease implementation Consortium (SCDIC) - www.scdic.rti.org. The Sickle Cell Disease Implementation Consortium (SCDIC) is the first research program to use Implementation Science to identify and address barriers to quality care in Sickle Cell Disease (SCD). Implementation science examines study methods that promote the adoption of research findings into healthcare. Therefore the broad scope of implementation science is particularly suited to address healthcare in SCD. SCDIC is a cooperative research program that will promote the development and evaluation of strategies that take a multi-modal, multi-sector approach to 1) conduct a needs- based community assessment of the barriers to care for subjects with SCD, 2) design implementation research studies that address identified barriers to care and 3) participate in the development of a SCD Registry, in collaboration with clinical centers and the NHLBI. Each Clinical Center is expected to enroll and follow at least 300 adolescents and adults with SCD into the SCD Registry.

The HU Toolbox was designed to help providers treating Sickle Cell Patients. The Tool Box works to specifically aid in the process of treating patients with Hydroxyurea. It acts as an interactive platform that helps determine how to continue and alter treatment dependent on a patient’s needs. It also allows providers to communicate via chat with personnel on the SCDIC study and Sickle Cell specialists as needed. to communicate via chat with personnel on your study and Sickle Cell specialists as needed. Allows providers to communicate via chat with personnel on your study and Sickle Cell specialists as needed.