The Epidermolysis Bullosa Activity and Scarring index (EBDASI) is a scoring system that objectively quantifies the severity of Epidermolysis Bullosa (EB)
EBDASI
What is it about?
The Epidermolysis Bullosa Activity and Scarring index (EBDASI) is a scoring system that objectively quantifies the severity of Epidermolysis Bullosa (EB). EB is a rare genetic skin disease that is characterized by the formation of blisters and development of erosions and scarring after trauma to the skin.
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App Store Description
The Epidermolysis Bullosa Activity and Scarring index (EBDASI) is a scoring system that objectively quantifies the severity of Epidermolysis Bullosa (EB). EB is a rare genetic skin disease that is characterized by the formation of blisters and development of erosions and scarring after trauma to the skin.
The EBDASI is an essential tool for clinicians and patients to monitor the severity of the disease. It has also been designed to evaluate the response to new therapies for the treatment of EB.
The EBDASI was developed and validated by Professor Dedee Murrell and her team of students and fellows at the St George Hospital, University of New South Wales, in Sydney, Australia. It was presented at the International Investigative Dermatology congress in Edinburgh in 2013 and a paper-based version was published in the Journal of American Academy of Dermatology in 2014.
This free mobile-based application was developed to improve the availability and accessibility of the EBDASI for the use by patients and clinicians around the world.
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