florio PNH

florio PNH is a digital support solution for people with paroxysmal nocturnal haemoglobinuria (PNH). It enables users to organise and record their health and treatment information to support self-management of their PNH.

The App allows users to set up their personalised PNH diary, log and track their medications, haemoglobin levels, and effects of PNH, such as fatigue, pain, dark urine, etc. Users can set up reminders where relevant to help them manage their PNH routine.

Users are able to view historical data that they have logged and observe changes over time in a clear and visual format that may help them better understand their condition and can help facilitate meaningful discussions with their healthcare team to inform their treatment plan and care.

The application does not provide specific treatment recommendations to the user or their healthcare professional to alter a previously prescribed treatment or therapy.