STAR: The Symptom Tracker

STAR: The Symptom Tracker app for people with ATTR amyloidosis and their families, makes the routine recording of symptoms quick and simple, empowering you to capture and share information on the changing pattern of your symptoms with your doctor.

STAR: The Symptom Tracker app has an easy to navigate menu with the most common symptoms helping you to:
• Identify and record the complete picture of your symptoms listed by body part
• Track symptom changes with a simple click, whenever it is most convenient for you
• Make diary entries on the impact of each symptom on day-to-day activities, mood,
energy levels, and relationships with family and friends
• Share with your doctor in confidence, a summary of any symptom changes and their impact over time
• Personalize the app for the symptoms that matter most to you

Regular symptom tracking can help you to:
• Recognize and develop a more complete understanding of your symptoms over time
• Identify early changes in your symptoms
• Record the changes that have had the greatest impact on your well-being and lifestyle
• Better communicate any changes in your condition with your doctor
• Assert greater control over your health and share in discussions about future care

STAR: The Symptom Tracker app has been developed by clinicians and patients with hereditary transthyretin-mediated (hATTR) amyloidosis, also known as ATTRv amyloidosis, for people with ATTR amyloidosis and their families.

Hereditary ATTR amyloidosis is an inherited, progressive disease caused by a genetic mutation that results in the accumulation of a modified transthyretin (TTR) protein. This results in the formation of amyloid deposits in the heart, nerves, gastrointestinal tract, and other organs.

Reviews
“We need tools to encourage patients to be clear and specific when describing their symptoms.”
- Professor Philip Hawkins, National Amyloidosis Centre University College, London, UK.

“The disease can do a lot of damage if you let it evolve, so knowing, being vigilant, may help you to be diagnosed and get a treatment earlier. Therefore this may avoid irreversible degradations, such a severe balance issue or some difficulties to walk.”
- Jean-Christophe, hereditary ATTR amyloidosis patient, France.

Built with both the patient and clinician in mind.

Please keep sharing feature requests, questions & advice.

Contact as Alnylam-PSTinfo@cellohealth.com.

STAR: The Symptom Tracker app does not pursue a medical purpose. It is designed to keep a record of users’ symptoms, how they change over time, and their impact on users’ well-being and lifestyle. STAR: The Symptom Tracker app is not intended as a disease monitoring tool or as a symptoms checker. To have symptoms checked, users are advised to talk to their healthcare professional. Furthermore, STAR: The Symptom Tracker app does not make any medical diagnoses. Users are advised to seek the advice of a medical professional if they are concerned about their health.

The data you enter in STAR: The Symptom Tracker app remains private and is for your personal use. The data about you and your symptoms will be stored on the mobile phone that you use to access the app. The data generated by the use of the app will only be collected, stored, and processed by Alnylam in compliance with applicable data protection legislation including the General Data Protection Regulation 2016/679 (“GDPR”).

STAR: The Symptom Tracker app was developed and funded by Alnylam Pharmaceuticals, a company established in Switzerland with its registered office at Grafenauweg 4, Zug (https://www.alnylam.com). 02.21 NP-CEMEA00040.